Monday, July 12, 2010

Mountain Monday

First the fill in on the information, pictures to follow. So if you want to read the latest, it is next. If you only come for the pictures, then you can scroll down til you get there.
Little Man, Little Man. Tough times here at Casa De Tangled. Last Monday found me sobbing my heart out over everything that has gone on. My broken computer, my hurting heart, my lack of ability to cope with how difficult my son was being. We have no prospects of finding a program for the boy, well, maybe, and it is big maybe, one. I wondered what would happen. I wondered how long could I keep dealing with the level of difficulty and aggression we are at with our beloved boy.
My computer's dvd driver/reader is broken, but at least everything else works.
I was talking with Little Man's case manager, and I swear this just popped into my head while we were discussing our options. "if we lived in a more metropolitan area, would there be more service providers to choose from?" Surprised, she answered, well, yes, quite a few more. I called Bald Man and next thing you know, we are moving! Our lease is up here at the end of August, so we are leaving for a more populated area of Utah.
We have already found a program that seems to be the answer to a prayer for Little Man. We go interview them tomorrow. We are looking for a little house to rent, the boy really needs a yard to play in. We never meant to stay this apartment for so long. But at the same time, if we still owned our house, there is no way we could just pick up and leave like we are doing. Funny... I never thought I would be grateful we didn't own our house anymore, but I am.
I went from feeling totally helpless and trapped, to feeling like so many doors have been opened for us. Thank you so much for your prayers and good thoughts, I have no doubt they are contributing to our increased peace of mind.

Bad news: no summer program
Good news:His sat. respite person is picking up a couple of hours a day with Little Man so I can have a break.

Bad news: The days with the boy are LONG
Good news:his medication switch is finally working and the level of foulness of our home has gone down significantly.

Bad news: He has lost at least 10 pounds in the last 8 weeks, so we are back to having to tube feed him again at night.
Good news: He definitely has the extra weight to lose. He still has his tube and I am so grateful we can make up for what he isn't getting by eating. (I am struggling with not feeling crushed or that we have gone backward with his eating, this isn't an easy thing for me)
On to pictures! Summer is here, and it is hot and getting very dry.

Utah's summer snow, also known as cotton from the cottonwoods.

A thistle, even weeds can be beautiful.

I think this little bee is trying to do a headstand.


And finally, he is smiling! I missed his smiles while he was in his dark place.

Big adventures in store for our little family.

11 Kids Who Want To Play:

Kristina P. said...

I am keeping my fingers crossed for you tomorrow, Jo. You both deserve so many good things.

K J and the kids said...

I am trying to stay very positive and be very happy for you.
Where are you moving ? What part ?
South ?

Happy for your positives. Hoping the not so good things work out quickly.
Lots of hugs for you Jo.

Lee said...

I am so glad that it looks like windows are being opened after doors were being shut. Hope things keep rolling along in a positive fashion.

M-Cat said...

Fingers crossed that things continue to get better!

Bonnie the Boss said...

Jo, I am so glad things are going better for you!!! I will pray that you find the perfect place for you and your sweet boy.

Just SO said...

I am so glad that you are feeling that maybe things are looking up. I hope you find a great new place that will welcome your family and that you get the boy into the program you are looking at. (((Hugs)))

And great pictures!

Sarah said...

Thistles are NOT beautiful, they are noxious weeds! And they make me sneeze!

Adoption of Jane said...

Aw I am happy to meet you too!! Your lil man is handsome!! The move sounds great!! If you go to you can find resources and meet families in your new area on the Spectrum. If you have problems finding what you need add me as a friend (add me even if you don't) and I will show you around the site. My screen name is: KnottyLbc

A. K. said...

Great pics... It feels to be here after such a long time!

Yondalla said...

I do love Mountain Mondays!

Thinking about you always.

Stephen said...

Beautiful pictures. I've been struggling with my daughter's Tourette's today. Appreciate how hard things can be, how precious beauty is.