Did I actually survive last week? I am not quite sure. It was really hellish on many levels. Little Man's psychiatrist has raised his depak0te dose. While depak0te is mainly a seizure medication, and certainly Little Man has plenty of those! It is also used for mood regulation in the mood disordered. We really have to watch this with our boy, he has had his bone marrow suppressed when we got into some higher dosages. So along with the increase, we are doing weekly, sigh, blood draws. All the way into the Large City children's hospital. Sigh. But I think by the weekend, the raised dosage seems to have done him some good. Sleeping better and besides that, the foulness is receding and we really had a good weekend with him. Much less screaming and violence, and Little Man seemed to be doing better too! (hee hee)*
And for your viewing pleasure
The mountains are just looking soooo incredibly beautiful, I couldn't just choose a couple to share, so I made a slide show to share with you instead. But stupid photobucket won't let me imbed it so you are going to have to click on the link if you wish to see the slide show.
Mountains in July Slide show
AND, because Mountain Monday is my chance to showcase my pics from previous days, here are a few more.
The Princess and I took Little Man and the Pea to a nearby water park type thingy.
Look at my boy's chubs! I love them. Those rolls are safety, they are health, they are insurance against starvation. If you have watched your child literally starve, those rolls are everything. I love them!
Look at his smile!
These ones I like because the water looks so cool.
More playing
Handsome cutie!
Come on, ya gotta love the tongue action!
Guess who is really walking now?
On the 4th, I bought the younger kids red, white and blue outfits, meaning to take cute pics. Yeah, those didn't turn out so well. Here is one.
I got a reasonably cute one, but I will have to photoshop June Bug into it.
Mostly they looked like this:
I tried. What can I say?
The Pea and June Bug enjoying some summer fun together.
I am just so endlessly grateful last week is over. Everyone is feeling better, my hub, myself and my boy. We are all breathing deeper and I, for one, am so very grateful for many things. Good medical attention for our son, good friends and bloggy support, a strong marriage, a loving hubby, my family who has supported us through this, Little Man's services. Somehow, coming through last week, all these things have taken on a precious glow for me and I am holding them a bit closer and with so much gratitude. Thank you, for all you have done.
*Boring medical stuff... And just for information's sake, cause I know some of my bloggy friend's kid's might also be on it. There is a therapeutic blood level you need, usually between 50-100.His baseline blood level was 72 And that was with a divided dose of 375 morning and 375 at night. We are giving him an extra 125 every night right now. So we can raise it a bit, but not too, too much. When we had him at 1000 mgs a day, it was wonderful. He slept so well and his behavior was so great. Until his bone marrow decided to stop producing important things, like platelets and other stuff. His blood level wasn't even too high, but obviously too high for his body.
Monday, July 14, 2008
The Mountains In July
Posted by
Jo
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6:06 PM
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15 Kids Who Want To Play:
Wow, yeah, he really is looking healthy. I'm so glad things are coming around!
Awww, what a bunch of cute kids! Love the rolls! He's rollin in love :)
Love the flabbiness.
And I am very glad you are feeling better.
Glad this week is going better.
The babies are beautiful as always!
Waterpark looks like great fun. So good to see Little Man with some "security" on him.
I'm glad you are feeling better. The pics of the kids are great. They are such lovely kids. I hope things just get better and better for you.
I used to take depakote. Is it one of the ones that makes you really tired--I think I remember sleeping all the time while I was on it?
Again with that sunny outlook.
I guess after viewing those pictures I can see why.
So glad you made it through.
Hope the meds take care of the problem.
That is one cool looking water park! And the kids look like they are having fun, just being kids...nothing else to worry about - except maybe that little girl with the squirt gun. :)
Things looking just a bit better than last week... and lets hope for better the next, and the next...
take a break woman!
Love the pictures! I need the name/location of that splash park (email me k?) It was great to chat with you today- I'm glad things are looking up. Yay for chubs! (I wish I could say that about my flab).
I'm glad things are going better for you all. Hang in there!
and you know i live vicariously through your pics - so keep em coming.
glad things have hit a somewhat even keel for now anyway. hope it sticks for a bit.
So glad to hear things are better and you had a good weekend.
The water park thingie looks like so much fun. Such cute pictures of the kids!
Hahaha — I love the melee of Fourth of July outfits picture. We have a lot of those two, with cats and kids getting all mixed up together.
Go Junebug with the walking!
I am glad things are looking up for Little Man and everyone.
That waterpark looks great. That reminds me, I have to look up directions to the one in our town for later, because it promises to be a scorcher...
That water park rocks! I wanna go there!
The tongue action is too cute!
You are blessed with awesome kids in your life! Little Man's rolls are beautiful!
I love those mountains!
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