Update

The GI doc's office called this afternoon. After two phone calls on my part for a follow-up. Nope, his gut is not full of poop. Good news that! Although the Nurse practioner did say he had an awful lot of gas. She wanted to know if he was getting any lactose, I said no, we don't let him have any milk, seeing as how he is allergic to it and all that...sigh.
I said I had ordered the Boost Breeze, which is one of the things they insisted we try, we are waiting for Walgreens to deliver it. I did say we doubted it would help, since he has plenty of formula here, but refuses to drink it. But we really must do what we can to help him.
And a clarification since Manuela asked
"But honey... what did you write yesterday that left you feeling vulnerable... I'm confused... your Doctor is an ass and you are worried about your child... did I miss something?"
I figure she might not be the only confused Bloggy Pudding. The reason why I dreamed I was naked in front of a group of people last night has to do with feeling so very vulnerable. This has to do with putting in words and speaking it publicly of the fears for my son. The horrible reality of certain death by starvation and possible death by infection. You have to realize the day to day fear we deal with. The non stop medical problems and crises. Very often Bald Man and I don't even talk about it, how scared we are. When Bald Man looked at me the other night and said that Little Man was having seizures again? He also said, "I feel like this is the beginning of the end." What do you say to your husband when he says that to you? My eyes filled with tears and I just tried to breathe. Still am. Trying to breathe, through the pain and the fear and the helplessness.
I hope that clarifies my fear and my sense of vulnerability. I told you what I haven't said to anyone, not my family, not my friends, not my husband. You know my heart.