Saturday, September 16, 2006


Much improvement with Little Man. My heart is singing with joy and relief. He is not back to his usual self, but he is swallowing today! Root Beer, Gatorade, and he ate ice cream! Geez, they were talking NG tube, Liza knows all about that one, huh hon? But it is looking really promising that we will go home tomorrow with or without an NG tube if needed. If he continues the way he is going with drinking though, there will be no NG tube and just home.
He woke up this morning, shaky but able to talk, not like yesterday when there was no one behind his eyes. His eeg was abnormal, but only his usual abnormal, not constant seizurey abnormal. So a GOOD abnormal! My boy is returning to his body and we are all breathing a sigh of relief. wheewww.
Bald Man is here with me today and it is nice to have some help. In fact, Bald Man is in the playroom playing game cube with the little monster whilst I check in with my bloggity peeps.
Little Man's movements are stiff, shaky and slooooowwww. Like someone slowed him waaaayyyy down. He talks slow, moves slow. But he is talking and moving! Not doing so good with swallowing solid stuff, but he is not an eater anyway, and as long as he can drink his formula, who cares for now? Not that he has, drank his formula, that is. Today is day number 7 with none, he has lost a fair amount of weight, but he had a few extra pounds anyway.
I feel like telling the nutritionist who gave us a bad time about those few pounds, nanny, nanny boo boo! This is EXACTLY why we wanted those pounds on him. It gives us breathing space. And anyone who has ever had their child be life threatening thin is grateful for some wiggle room.
So my Bloggiest cream puffs, things are looking up here at Children's Hospital R Us. And the current plan is forbearing any backwards slippage with Little Man's recovery, we will be going home tomorrow. Thank you for your prayers, *good thoughts*, kind wishes and everything. You are a ray of sunshine on a stormy day.

3 Kids Who Want To Play:

Sugar Pixie said...

Thank heavens! And thanks for the update! I've been all worried over here. You are SuperMom!

Klynn said...

That is wonderful news! Sounds like it's time for a double chocolate banana fruit smoothie (with formula) celebration. Make it a party. And whipped cream and a cherry on top. Yay Little Man! Keep up the good work. You are awesome, Jo. Keep the updates coming.

Jane said...

I'm glad things are going well. Blessings on all of you today.