You'll Dig Your Eye Out!

I told my husband the other day that this surgery thing with Little Man is like digging your own eye out with a spoon, without the benefit of anesthesia. The best part of all??? I get to do it again with the remaining eye in a just a wee bit over two weeks. I don't think I shall have recovered by then. At the same time, I wish it were tomorrow. You see, our world is crumbling, our son is rapidly losing weight, why you ask? Because Little Man can not take a shower.
I am sure you are wondering what in the world that phrase means. Is it some sort of puzzle, or koan? No, it is just a statement of fact, but behind those simple words lie an entire line of dominoes, cascading down into a tumble of chaos and fear.
I am going to have to back this truck up, for those of you who don't know the WHOLE story. Little Man has eating issues. Always has. For reasons unexplained and/or unexplainable. When he was a wee babe, and not gaining weight, the doctor had us add an extra scoop of formula to every bottle. He did well after that. He weighed 31 lbs when he was three years old. The next two years were not good for him. I kept telling his pediatrician that I thought he looked very thin, but the doc kept telling me he was fine, just fine. I got tired of it by the time Little Man was five. He weighed 32 1/2 lbs. Just 1 1/2 lbs more than when he was three. I took it upon myself to make an appointment with the GI doc. They were ready right then and there to admit him and put a g-tube in. Oh, but my mother's heart just railed against the idea. It is hard to explain, but when you have a child who already has so many things "wrong" with him, it is just heartbreaking to contemplate "making" something else be wrong with him. I begged them to let us try get him to drink the formula instead of getting a g tube. At that point, Little Man woke up every morning very, very thirsty. One of the medications he is on makes people thirsty. He drank water and juice. We never were able to get him to eat much once he was past the very finely pureed baby foods. We were hoping we could find something juice-like he would be willing to drink. I wish I knew why it started in the shower, but for the life of me I can't remember. But for some reason, that is what we did. Gave him the juice-formula (it had to be non soy, non dairy and the only one that is like that is the more expensive than gold elemental formula) in the shower. Fast forward a few years and here we are. He can not take a shower for two weeks, and he will not drink his formula, (which, because of his insurance and now his own oddity isn't the expensive stuff) outside of the shower. He is down five pounds. We are worried. And now, now I wish I were digging my other eye out with a spoon, it would be so much easier than watching him NOT eat. Less than 300 calories a day right now. It is killing me.